Developing a toolkit for increasing the participation of Black, Asian and Minority Ethnic communities in health and social care research

Farooqi, Azhar and Jutlla, Karan and Raghavan, Raghu and Wilson, A. and Uddin, Mohammud Shams and Akroyd, Carol and Patel, Naina and Campbell-Morris, Pamela Peggy and Farooqi, Aaisha (2022) Developing a toolkit for increasing the participation of Black, Asian and Minority Ethnic communities in health and social care research. BMC Medical Research Methodology. ISSN 1471-2288

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Abstract

Background
It is recognised that Black, Asian and Minority Ethnic (BAME) populations are generally underrepresented in research studies. The key objective of this work was to develop an evidence based, practical toolkit to help researchers maximise recruitment of BAME groups in research.

Methods
Development of the toolkit was an iterative process overseen by an expert steering group. Key steps included a detailed literature review, feedback from focus groups (including researchers and BAME community members) and further workshops and communication with participants to review draft and final versions.

Results
Poor recruitment of BAME populations in research is due to complex reasons, these include factors such as inadequate attention to recruitment strategies and planning, poor engagement with communities and individuals due to issues such as cultural competency of researchers, historical poor experience of participating in research, and lack of links with community networks. Other factors include language issues, relevant expertise in research team and a lack of adequate resources that might be required in recruitment of BAME populations.

Conclusions
A toolkit was developed with key sections providing guidance on planning research and ensuring adequate engagement of communities and individuals. Together with sections suggesting how the research team can address training needs and adopt best practice. Researchers highlighted the issue of funding and how best to address BAME recruitment in grant applications, so a section on preparing a grant application was also included. The final toolkit document is practical, and includes examples of best practice and ‘top tips’ for researchers.

Item Type: Article
Identification Number: https://doi.org/10.1186/s12874-021-01489-2
Dates:
DateEvent
3 December 2021Accepted
14 January 2022Published Online
Uncontrolled Keywords: Ethnic health, research participation, toolkit, patient and public involement
Subjects: CAH04 - psychology > CAH04-01 - psychology > CAH04-01-01 - psychology (non-specific)
CAH15 - social sciences > CAH15-04 - health and social care > CAH15-04-03 - health studies
Divisions: Faculty of Business, Law and Social Sciences > School of Social Sciences > Dept. Psychology
Depositing User: Aaisha Farooqi
Date Deposited: 17 Jan 2022 09:34
Last Modified: 28 Apr 2022 12:58
URI: http://www.open-access.bcu.ac.uk/id/eprint/12654

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