End-of-life decision making between doctors and parents in NICU: The development and assessment of a conversation analysis coding framework

Shaw, Chloe and Connabeer, Kathrina and Drew, Paul and Gallagher, Katie and Aladangady, Narendra and Marlow, Neil (2022) End-of-life decision making between doctors and parents in NICU: The development and assessment of a conversation analysis coding framework. Health Communication. ISSN 1041-0236

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Abstract

We report the development and assessment of a novel coding framework in the context of research into neonatal end-of-life decision making conversations. Data comprised 27 formal conversations between doctors and parents of critically ill babies, recorded in two neonatal intensive care units. The coding framework was developed from a qualitative analysis of the recordings using the method of conversation analysis (CA). Codes underpinned by our qualitative analysis had in the main moderate to strong agreement (inter-rater reliability) between coders; three codes had lower agreement reflecting the use of euphemisms for death and disability. Coding these interactions confirmed the significance of the doctors’ talk in terms of parental involvement in decision-making, whilst highlighting areas warranting further qualitative analysis. This quantifiable representation provides a novel outcome based on evidence that is internal to the conversation rather than influenced by other factors related to the baby’s care or outcome.

Item Type: Article
Identification Number: https://doi.org/10.1080/10410236.2022.2059800
Dates:
DateEvent
31 January 2022Accepted
20 April 2022Published Online
Uncontrolled Keywords: Conversation analysis, communication, health, coding, decision making, neonates, end-of-life, parents, withdrawing, withholding
Subjects: CAH04 - psychology > CAH04-01 - psychology > CAH04-01-04 - psychology and health
CAH15 - social sciences > CAH15-04 - health and social care > CAH15-04-03 - health studies
Divisions: Faculty of Business, Law and Social Sciences > School of Social Sciences > Dept. Psychology
Depositing User: Kathrina Connabeer
Date Deposited: 20 Apr 2022 12:49
Last Modified: 29 Apr 2022 09:56
URI: http://www.open-access.bcu.ac.uk/id/eprint/13153

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