The experiences of children and young people of using silk garments for the treatment of eczema: a nested qualitative study within the CLOTHES randomised controlled trial.

Wake, E. V. and Batchelor, J and Lawton, S and Thomas, K.S. and Harrison, E and Cowdell, Fiona (2017) The experiences of children and young people of using silk garments for the treatment of eczema: a nested qualitative study within the CLOTHES randomised controlled trial. British Journal of Dermatology. (In Press)

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Abstract

Background
Many children suffer with skin diseases, but to date, most dermatological research has been done ‘on’
rather than ‘with’ children; in this study we actively sought the experiences of children and young
people. Atopic eczema (AE) is a chronic, itchy, inflammatory skin condition that affects around 20% of
children and can impact on health and wellbeing for children and their families. The role of specialist
clothing in the management of AE is poorly understood.
Objectives
The aim of this study, which was nested in a randomised controlled trial was to qualitatively examine
child participants’ experiences of using silk garments for the treatment of AE.
Methods
Eighteen children aged 5-15, who took part in the CLOTHES trial, participated in age-appropriate
individual interviews or focus groups.
Results
Thematic analysis generated 4 themes directly related to the garments: i) expectations of the garments;
ii) wearing the silk garments; iii) did they help? and iv) thoughts about the garments. The conclusions
from this nested qualitative study are that: there was some limited improvement in eczema for some
children but that the hoped for ‘miracle cure’ did not transpire. A mixed picture of knowledge, beliefs
and experiences of using the silk garments emerged.
Conclusion
Engaging children in the evaluation of the garments provided first hand nuanced insights that enhanced
understanding of the CLOTHES study as a whole. This nested study demonstrates that children can and
indeed want to be engaged in dermatological research in meaningful ways that add to our
understanding of treatment options.

Item Type: Article
Subjects: B700 Nursing
Divisions: UoA Collections > UoA 03: Allied Health Professions, Dentistry, Nursing & Pharmacy
Faculty of Health, Education and Life Sciences > Centre for Social Care, Health and Related Research (C-SHARR) > Quality of Care
Depositing User: Fiona Cowdell
Date Deposited: 16 Nov 2017 08:33
Last Modified: 16 Nov 2017 08:33
URI: http://www.open-access.bcu.ac.uk/id/eprint/5314

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