Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study

Harvey, M.E. and David, A.L. and Dyer, J. and Spencer, R. (2019) Pregnant women’s experiences and perceptions of participating in the EVERREST prospective study; a qualitative study. BMC Pregnancy and Childbirth, 19 (144). pp. 1-13. ISSN 1471-2393

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Abstract

Abstract
Background: The EVERREST Prospective Study is a multicentre observational cohort study of pregnancies affected
by severe early-onset fetal growth restriction. The study recruits women with singleton pregnancies where the
estimated fetal weight is less than the 3rd centile and below 600 g, between 20 + 0 and 26 + 6 weeks of pregnancy,
in the absence of a known chromosomal, structural or infective cause.
Method: The reported study was retrospective descriptive qualitative interview study of women who had
participated in the EVERREST Prospective Study. The aim of this study was to explore the experiences and
perceptions of pregnant women taking part in research during a pregnancy affected by severe early-onset fetal
growth restriction. Audio-recorded semi-structured telephone interviews were conducted with a purposive sample
of 12 women, at least 1 year after delivery of their baby. Two of these pregnancies had ended in stillbirth and one
in neonatal death, reflecting the outcomes seen in the EVERREST Prospective Study. Participants gave informed
consent, were 16 years or older and were interviewed in English. A topic guide was used to ensure a consistent
approach. Questions focused on pregnancy experiences, involvement with the EVERREST study and potential
involvement in future research. Recordings were transcribed verbatim for thematic analysis using NVivo10.
Results: Four broad themes were identified; ‘before joining the EVERREST Prospective Study’, ‘participating in
research’, ‘information and support’ and ‘looking back and looking forwards’. Each broad theme incorporated
several subthemes. All participants recalled their reaction to being told their baby was smaller than expected. The
way this news was given had a lasting impact. A range of benefits of participation in the EVERREST Prospective
Study were described and the participants were positive about the way it was conducted. As a consequence, they
were receptive to participating in future research. However, the findings suggest that research teams should be
sensitive when approaching families at a difficult time or when they are already participating in other research.
Conclusions: This study highlights the willingness of pregnant women to participate in research and identifies
strategies for researchers to engage participants.
Keywords: Pregnancy, Fetal growth restriction, Placental

Item Type: Article
Subjects: B700 Nursing
B900 Others in Subjects allied to Medicine
Divisions: Faculty of Health, Education and Life Sciences > Centre for Social Care, Health and Related Research (C-SHARR) > Family Health
Depositing User: Merryl Harvey
Date Deposited: 07 May 2019 09:37
Last Modified: 07 May 2019 09:37
URI: http://www.open-access.bcu.ac.uk/id/eprint/7422

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