The experience of children with parents diagnosed with young onset dementia: A systematic literature review

Wang, Ning and Brooke, Joanne (2020) The experience of children with parents diagnosed with young onset dementia: A systematic literature review. British Journal of Neuroscience Nursing, 16 (4). ISSN 1747-0307

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Abstract

Background: Young onset dementia (YOD) may develop rapidly, and affect those who have dependent children. Currently, there remains a lack of understanding of the impact on children living with a parent with YOD.
Aim: The aim of this systematic literature review is to explore published literature in order to understand the impact on children living with a parent with YOD.
Methods: A systematic search of the following databases: Medline; PsychINFO; CINAHL and Scopus for literature published from 1/1/2013 to 31/12/2018.
Results: Three major themes were identified, firstly coping encompassed two sub-themes of avoiding the situation and being empowered. Secondly, change encompassed two sub-themes of change of personality and change of family role, and lastly loss.
Conclusion: There remains a need to raise awareness and develop support services for children of parents with YOD. Community nurses are the best place healthcare professionals to identify and support the needs of both the person with YOD and their children.

Item Type: Article
Identification Number: 10.12968/bjnn.2020.16.4.165
Dates:
Date
Event
6 May 2020
Accepted
26 August 2020
Published Online
Uncontrolled Keywords: young onset dementia, experience, children, literature review
Subjects: CAH02 - subjects allied to medicine > CAH02-04 - nursing and midwifery > CAH02-04-01 - nursing (non-specific)
Divisions: Faculty of Health, Education and Life Sciences > College of Nursing and Midwifery
Depositing User: Joanne Brooke
Date Deposited: 13 May 2020 07:31
Last Modified: 03 Mar 2022 15:37
URI: https://www.open-access.bcu.ac.uk/id/eprint/9226

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