The experience of children with parents diagnosed with young onset dementia: A systematic literature review

Wang, Ning and Brooke, Joanne (2020) The experience of children with parents diagnosed with young onset dementia: A systematic literature review. British Journal of Neuroscience Nursing, 16 (4). ISSN 1747-0307

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Abstract

Background: Young onset dementia (YOD) may develop rapidly, and affect those who have dependent children. Currently, there remains a lack of understanding of the impact on children living with a parent with YOD.
Aim: The aim of this systematic literature review is to explore published literature in order to understand the impact on children living with a parent with YOD.
Methods: A systematic search of the following databases: Medline; PsychINFO; CINAHL and Scopus for literature published from 1/1/2013 to 31/12/2018.
Results: Three major themes were identified, firstly coping encompassed two sub-themes of avoiding the situation and being empowered. Secondly, change encompassed two sub-themes of change of personality and change of family role, and lastly loss.
Conclusion: There remains a need to raise awareness and develop support services for children of parents with YOD. Community nurses are the best place healthcare professionals to identify and support the needs of both the person with YOD and their children.

Item Type: Article
Identification Number: https://doi.org/10.12968/bjnn.2020.16.4.165
Date: 26 August 2020
Uncontrolled Keywords: young onset dementia, experience, children, literature review
Subjects: B700 Nursing
Divisions: REF UoA Output Collections > REF2021 UoA 03: Allied Health Professions, Dentistry, Nursing & Pharmacy
Faculty of Health, Education and Life Sciences > School of Nursing and Midwifery
Depositing User: Joanne Brooke
Date Deposited: 13 May 2020 07:31
Last Modified: 05 Sep 2020 10:35
URI: http://www.open-access.bcu.ac.uk/id/eprint/9226

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