Supporting families managing childhood eczema: Developing and optimising Eczema Care Online using qualitative research

Sivyer, Katy and Teasdale, Emma and Greenwell, Kate and Steele, Mary and Ghio, Daniela and Ridd, M.J and Roberts, Amanda and Chalmers, JR and Lawton, Sandra and Langan, Sinead M and Cowdell, Fiona (2022) Supporting families managing childhood eczema: Developing and optimising Eczema Care Online using qualitative research. British Journal of General Practice, 72 (719). ISSN 0960-1643

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Background: Childhood eczema is often poorly controlled due to under-use of emollients and topical corticosteroids. Parents/carers report practical and psychosocial barriers to managing their child’s eczema, including child resistance. Online interventions could potentially support parents/carers; however, rigorous research developing such interventions has been limited.
Aim: To develop an online behavioural intervention to help parents/carers manage and co-manage their child’s eczema.
Design and setting: Intervention development using a theory-, evidence- and Person-Based Approach with qualitative research.
Methods: A systematic review and qualitative synthesis (32 studies) and interviews with parents/carers (N=30) were used to identify barriers and facilitators to effective eczema management, and a prototype intervention was developed. Think-aloud interviews with parents/carers (N=25) were then used to optimise the intervention to increase its acceptability and feasibility.
Results: Qualitative research identified that parents/carers had concerns about using emollients and topical corticosteroids; incomplete knowledge and skills around managing eczema; and reluctance to transitioning to co-managing eczema with their child. Think-aloud interviews highlighted that while experienced parents/carers felt they knew how to manage eczema, some information about how to use treatments was still new. Techniques for addressing barriers included: providing a rationale explaining how emollients and topical corticosteroids work; demonstrating how to use treatments; and highlighting that the intervention provided new, up-to-date information.
Conclusions: Parents/carers need support in effectively managing and co-managing their child’s eczema. The key output of this research is Eczema Care Online (ECO) for Families; an online intervention for parents/carers of children with eczema, which is being evaluated in a randomised trial.

Item Type: Article
Identification Number:
1 February 2022Accepted
10 February 2022Published Online
Uncontrolled Keywords: atopic eczema, paediatric dermatology, qualitative research, family practice
Subjects: CAH02 - subjects allied to medicine > CAH02-06 - allied health > CAH02-06-06 - complementary and alternative medicine
Divisions: Faculty of Health, Education and Life Sciences > School of Nursing and Midwifery
Depositing User: Fiona Cowdell
Date Deposited: 02 Feb 2022 11:55
Last Modified: 08 Jun 2022 12:40

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