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Informal Supporters of Elder Abuse Victims: Who Are They and What Is Their Experience Seeking Help?

Abstract

This study examined the characteristics and experiences of informal supporters of elder abuse victims, including family members, friends, and neighbors—referred to as concerned persons. The researchers utilized secondary data from a UK national elder abuse helpline to investigate the profile and help-seeking experiences (including the impact of helping) of concerned persons reporting abuse to the helpline. The researchers focused on one year of data (2017–2018), and 1623 records met inclusion criteria. Of these, 1352 were reported by a concerned person, and descriptive statistics are provided to describe this sample. The help-seeking experience was investigated using qualitative content analysis. Concerned persons were primarily female family members, often adult children of the victim and siblings of the perpetrator. They faced barriers to helping the victim, particularly in relation to formal services. Many also reported impact as a result of knowing about the abuse or helping the victim; particularly to their mental health and their relationship with the victim. Findings indicate that concerned persons often face substantial barriers and negative impact when they support elder abuse victims. There is a need to advance research on concerned persons and identify ways of effectively supporting them, given their essential role in facilitating elder abuse victims’ access to formal services.

Elder abuse (EA) (also known as elder mistreatment or older adult abuse or mistreatment) is defined as “a single or repeated act or lack of appropriate action, occurring within a relationship of trust, which causes harm or distress to an older person” (World Health Organization [WHO], 2021, para. 2). There are different types of EA: financial abuse or exploitation, physical, psychological or sexual abuse, and neglect (Yon et al., 2017). Although EA can be perpetrated by non-family members, such as professionals or friends, EA is often family-perpetrated (Dow et al., 2020). EA is a common problem worldwide, with recent systematic reviews finding a pooled prevalence rate in the community of 15.7% (Yon et al., 2017) and 64% of staff admitting to engaging in mistreatment in institutions such as care homes (Yon et al., 2018). In the United Kingdom (UK), EA is estimated to affect between 2.6% and 4% of adults 66 and older living in private households (O'Keeffe et al., 2007). Although this statistic is lower than worldwide estimates, this difference could be due to the use of stricter definitions in the specific study. In addition, there are no more recent prevalence studies in the UK, so prevalence could be higher. EA has been linked to severe consequences for victims such as psychological and physical harm, including higher mortality rates (Yunus et al., 2019).

An important challenge in the field is under-reporting (Fraga Dominguez et al., 2021a), with only between 4 and 14% of cases estimated to reach the attention of formal services (Acierno et al., 2020; Amstadter et al., 2011; Lachs & Berman, 2011). Under-reporting leads to victims and perpetrators not receiving help, which may result in escalation (Burnes et al., 2019a; Storey & Perka, 2018), risk to other potential victims, and negative consequences for advancing research, given that studies will often be based on data for the cases that are reported, providing a biased perspective of the phenomenon (Storey, 2020). Research to combat under-reporting has primarily focused on the perspective of professionals (i.e., the challenges they experience with screening, detection, and reporting of EA cases; e.g., Killick & Taylor, 2009). Practically, tools have been developed to increase recognition of EA signs and EA evaluation, and countries such as the United States, England, Australia, and Canada have developed mandatory reporting policies to increase professional reporting, with varying scopes (Donnelly, 2019; Lachs & Pillemer, 2015). Less frequently, research on under-reporting has focused on the victims’ perspectives of help-seeking and the barriers they face (see Fraga Dominguez et al., 2021a for a review). The latter has often highlighted the existence of unique barriers for EA that is perpetrated by family members, particularly adult children (Dow et al., 2020; Fraga Dominguez et al., 2021a).

An area that has received more limited attention is the perspective of informal supporters of EA victims. In other fields of interpersonal violence, victims frequently disclose their victimization to informal sources (e.g., friends or family), who are often the first disclosure recipients (Voth Schrag et al., 2021). Thus, informal receivers of interpersonal violence victims’ disclosures are usually in a privileged position to both support victims and seek help on their behalf. In fact, intimate partner violence researchers have identified research with this group as essential in advancing intervention programming (Sylaska & Edwards, 2014). Importantly, the involvement of these informal supporters in EA cases has been found to predict victims’ formal service utilization, thus stressing their important role in connecting EA victims with help (Burnes et al., 2019b). In addition, the concerned person’s role may be particularly important when EA victims have cognitive problems that make it harder for these victims to recognize the abuse and access services (Fraga Dominguez et al., 2020, 2021a; Liu et al., 2021).

Several EA researchers have focused on the perspective of non-abusing family members, friends, and neighbors who support EA victims. Breckman et al. (2017) named these informal supporters “concerned persons” (p. 719), and we adopt the term in this paper. Much of the available research related to concerned persons has focused on the likelihood of a third party recognizing a situation as EA or deciding to become involved (e.g., Aday et al., 2017; Hourglass, 2020). Less commonly, researchers have focused on these third parties’ help-seeking experience, such as its impact or potential challenges accessing support (Breckman et al., 2017; Kilaberia & Stum, 2020). Breckman et al.’s survey study (2017) focused on the experiences and behavior of people who had encountered EA. They found that, of those who knew someone experiencing mistreatment, 60% became involved as helpers, thus indicating that, despite the potential barriers, such as fear of retaliation (Storey & Perka, 2018), a substantial number of non-professional third parties would become involved in an EA situation. Their study also highlighted the possibility of negative consequences for those who are aware of the abuse, and even more so for those who sought help, given that they found helping status to be positively associated with level of distress (Breckman et al., 2017). The level of distress attributed to the abusive situation was also predicted by the concerned person being female, having lower income, or increased age.

Overall, research about concerned persons’ profile, help-seeking role and experience, as well as the impact that these activities have on them remains limited, and has primarily been conducted in the United States. The limited research on non-professional supporters indicates that concerned persons may have an important impact on victims’ engagement with services (Burnes et al., 2019b). It also suggests that those who get involved in helping an older victim of abuse may experience distress as a result (Breckman et al., 2017). Little is known about the barriers they face when seeking help, and other aspects of help-seeking (e.g., facilitators, sources of help; Fraga Dominguez et al., 2021a). Due to the important role that concerned persons have in supporting older victims of abuse, there is a need to develop a further understanding of their experiences to inform service provision and understand how to best support this population.

The Present Study

This study sought to improve the understanding of concerned persons’ roles and experiences in a UK context. The study focused on concerned persons’ characteristics, experience of help-seeking, and the impact suffered due to their knowledge of and involvement in EA cases. The aim was to answer the following research questions:

  1. 1)

    What is the profile of concerned persons (gender, relationship with victim and perpetrator)?

  2. 2)

    What are concerned persons’ help-seeking experiences, in relation to the following areas? a. Barriers to help-seeking; b. Facilitators to help-seeking; c. Sources of help; d. Responses from sources of help and degree of success in improving the victims’ situation

  3. 3)

    What do concerned persons want to achieve by seeking help (i.e., contacting a helpline) and what are their long-term wishes in terms of third-party intervention?

  4. 4)

    What is the impact on the concerned person of knowing about the abuse and/or getting involved in helping the victim?

Design and Methodology

Research Design and Data Source

This study involved a secondary analysis of cross-sectional data and is part of a larger study focused on help-seeking in EA. The data encompassed all the records entered in an EA helpline’s dataset between 22/5/2017 and 22/5/2018. The data source was Hourglass’ free helpline. Hourglass, formerly called Action on Elder Abuse and founded in 1993, is the only EA-dedicated charity in the UK (Hourglass, n.d.; O’Keefe et al., 2007; Podnieks et al., 2010). Recently, the organization has broadened their focus to include the general promotion of safer aging (Hourglass, n.d.). Hourglass’ helpline operates from Monday to Friday during working hours and has been operational since 1998 (Action on Elder Abuse, 2008), with cases recorded and managed electronically since 2017. The main purpose of the helpline is to offer advice to older adults affected by abuse by a trusted person, as well as other individuals concerned about the abuse of an older adult. Making an enquiry will not prompt an investigation or a formal report, and enquirers may remain anonymous. Nonetheless, staff and volunteers may recommend contacting adult safeguarding or the police and may, in some cases, make a referral to adult safeguarding if this is requested by the enquirer.

When the helpline receives an enquiry, the operator records a free text describing the enquirer’s situation, the help needed, and the advice provided. The charity gathers the data for their own records, and as such there are limitations to the analysis of data not gathered primarily for research purposes (e.g., missing data, inconsistent records). In addition, because the helpline is a source of advice, enquirers might contact the helpline when they have not yet found a solution for a case of abuse, thus the researchers expected the sample to be biased towards more negative experiences. However, the sample is also likely to reflect cases where enquirers are in the process of seeking help or considering help-seeking, and as such is unique in offering insight about these experiences.

For clarity of reference in this paper, those alleged to have engaged in EA will be referred to as perpetrators and those who were subjected to abuse will be referred to as victims.

Procedure

The first author received access to the helpline records through a written agreement and signed a confidentiality agreement with the charity. The researchers received ethical approval from their university.

The focus of the study were all enquiries (i.e., calls, emails, and letters) during the period from May 2017 to May 2018 (N = 2538). Data coding started in October 2018 and was completed in May 2019. Prior to coding the data, the researchers developed inclusion criteria. For inclusion in this study as a report by a concerned person, the case had to:

  1. 1)

    Be considered EA, as understood by the charity Hourglass and the WHO (2021). To guide decision-making in unclear cases, attention was paid to the helpline’s recommended actions (e.g., whether they recommended an EA organization or otherwise indicated that the case did not constitute EA). This procedure is consistent with a recent study focused on helpline enquiries (Weissberger et al., 2020).

  2. 2)

    Contain information about:

    i. Several key variables: a) abuse type(s), b) victim’s gender, c) victim-perpetrator relationship, and d) enquirer’s identity (victim vs non-victim).

    ii. Help-seeking from the perspective of the victims and non-victim enquirers, including concerned persons.

Materials

A data collection tool was developed to gather the data needed for the purposes of this study. The first author focused on the free texts and used the data collection tool to gather case characteristics. This tool was created based on previous literature, particularly a systematic review of victims’ help-seeking behavior (Fraga Dominguez et al., 2021a). The coding scheme recorded primarily nominal variables, some with categories (e.g., concerned person’s relationship with the victim), but many coded dichotomously as present or absent (e.g., barriers related to formal services). It also recorded variables as free texts, to be analyzed using qualitative content analysis. The variables recorded and relevant to the present study are included in Table 1. For reference, other variables relating to general sample characteristics are as follows: a) Victim and Perpetrator Characteristics: Demographic characteristics (e.g., gender, age). b) Victim and Perpetrator Relationship: Family member (including type), friend, acquaintance, professional. c) Abuse Characteristics: Abuse type(s) (financial, physical, psychological, neglect, sexual), abuse location (e.g., victim’s home, care or nursing home, sheltered housing, hospital, other).

Table 1 Data collection variables relevant to the concerned persons in the study

Final Sample

After applying inclusion criteria, out of the 2538 entries in the system, 1623 (64%) met inclusion criteria. The main reason for excluding 915 cases was that they did not meet the EA definition (n = 207, 23%) or that there was not enough information to conclude whether the case was EA (n = 192, 21%). A small number of enquiries excluded (n = 30, 3%) were repeat enquiries (flagged as such by the helpline staff) occurring within the period examined. Information for those matched enquiries was merged; thus, the 1623 cases represent unique cases. For the present study, only cases reported by a concerned person (family member, friend, neighbor, or acquaintance) were included. Within the original 1623 cases, 189 (12%) were reported by victims, 67 (4%) by professionals, 3 (0.2%) by the perpetrator, and in 12 cases (0.7%) the relationship with the victim was unknown. Thus, those cases were excluded, and the final sample for the present study was 1352 cases.

Inter-Rater Reliability

To ensure the coding was performed reliably, a research assistant (RA) independently coded 254 cases (10% of the original sample of records; N = 2538). The RA signed a confidentiality agreement with the charity before receiving a sample of 254 fully anonymized cases from the first author, randomly generated from the original sample. The first author trained the RA on the data collection tool and several practice cases were coded together to ensure consistency. The RA started coding in February 2019 and completed it in July 2019.

Inter-rater reliability was calculated for these cases using Cohen’s Kappa for categorical variables and Intraclass Correlation Coefficient (two-way, mixed methods, absolute agreement) for continuous variables (e.g., age). Cohen’s Kappa results ranged from .68 to .87, indicating good to very good agreement (Altman, 1999), and ICC1 ranged from .80 to 1, indicating good to excellent agreement (Koo & Li, 2016). See Table 2 for the average inter-rater reliability results by category.

Table 2 Inter-rater reliability average results by category

Data Analysis

Data were entered into IBM SPSS Statistics (Version 21), which was used to generate descriptive statistics for the variables with pre-identified categories. For variables that were gathered using free texts, data were analyzed qualitatively with the support of QSR NVivo (Versions 11 and 12). Qualitative content analysis was used, which has been deemed appropriate for summarizing large datasets and to generate categories of content (Drisko & Maschi, 2016). In this study, the researcher used a combination of deductive and inductive approaches. This combination was appropriate for the type of data in this study, where for many variables, pre-identified categories (i.e., derived from research, such as barrier themes) existed and were deductively generated. However, within these categories, the content was inductively analyzed.

For these analyses, the researcher became familiar with the data by reading it carefully before assigning codes. Subsequently, the researcher identified common themes and created subthemes. These themes and subthemes were revised iteratively as needed, and the approach to coding was data-driven. The researcher used memos to document and review decisions (i.e., to merge codes or create overarching themes), which were also used to reflect on the researcher’s impressions of the data and the analytic process, which facilitated reflexivity throughout (Shenton, 2004). The codes were primarily descriptive, which minimizes bias. To illustrate themes and subthemes, examples are provided; however, to preserve anonymity, quotes are not included. Given the large sample size, and to illustrate how many cases referred to specific themes or subthemes, frequencies are reported (Drisko & Maschi, 2016).

Results

General Sample Characteristics

For context here, basic sample characteristics are presented. In-depth details about the sample are presented in Fraga Dominguez et al. (2021b). Within the subsample of 1352 cases reported by concerned persons, the victims were primarily female (n = 882, 65%), and the abuse suffered predominantly financial (n = 859, 64%) and psychological (n = 623, 46%). The abuse happened at home in most cases (n = 984, 79%; 105 cases missing) and was frequently perpetrated by family members (n = 988, 73%), usually adult children (n = 658, 49%).

Profile of Concerned Persons

Most concerned persons were female (n = 968, 74%; 28 cases missing). As shown in Table 3, concerned persons were primarily family members of the victim and among those, most were the victims’ adult children. They were also commonly related to the perpetrator, primarily the perpetrators’ siblings.

Table 3 Relationship of the concerned person with the victim and the perpetrator

Help-Seeking Experience

The majority of cases had information about at least one of the variables of interest in relation to help-seeking experience, with only 14 cases (1%) lacking information for all the variables being examined.

Barriers to Help-Seeking

In 595 cases (44%) a barrier was identified in EA reporting by concerned persons. Due to the lack of research on concerned persons specifically, the themes for victims identified in a previous systematic review (Fraga Dominguez et al., 2021a) were used as a framework for coding, with content analyzed within those themes. However, 193 cases (32%) related to new themes. The most commonly mentioned barriers related to formal services, followed by fears and barriers related to the social network. The most common subthemes of each of those barrier themes and examples of these can be found in Table 4. In terms of the new barrier themes, these commonly related to the perpetrator’s behavior or influence on the victim, followed by the victim’s behavior.

Table 4 Concerned persons’ barriers by theme

Facilitators to Help-Seeking

In 542 cases (40%), there were facilitators and/or circumstances that prompted the concerned person to seek help. Most commonly, concerned persons were seeking help due to specific circumstances or triggers, such as recently becoming aware of, or learning new information about, abuse (n = 216, 40%); a concern for the victim’s wellbeing/safety (n = 75, 14%); or an escalation of abuse (n = 72, 13%). The most common facilitators were having proof of abuse (n = 27, 5%) or knowledge about EA or where to seek help (n = 10, 2%).

Sources of Help

Out of the 1352 concerned persons, 460 (34%) reported seeking help previously, most (n = 435, 95%) by contacting a formal source of help. Some had contacted an informal source (n = 13, 3%), and some both (n = 10, 2%; 2 cases unknown). The most common specific sources contacted were social services or adult safeguarding (n = 180, 40%), the police (n = 112, 25%), or legal advice (e.g., a solicitor; n = 49, 11%); however, a wide range of services were contacted.

Responses from Sources of Help and Outcomes

Where the type of response was known (n = 371, 81%; 89 cases unknown), the responses were coded as predominantly negative (n = 170, 46%), followed by neutral (n = 96, 26%), positive (n = 57, 15%), and mixed (both positive and negative; n = 48, 13%). At the time of the enquiry, where outcome was known (n = 370, 80%; 90 cases unknown), most concerned persons had been unsuccessful in stopping or improving the abuse situation (n = 314, 85%). In some cases, the situation had improved (n = 42, 11%), while in a few cases it had worsened following seeking help (n = 8, 2%). In a minority of cases, the enquirers had been successful in resolving the abusive situation (n = 6, 2%).

Perpetrator Confrontation and Responses

In 80 cases (6%), the concerned person had confronted the perpetrator. Perpetrators’ responses to confrontation were gathered and analyzed using qualitative content analysis. Of the 80, six (8%) responses were unknown or unclear. After reading the content of the other responses, the researcher classified the type of responses by whether the confrontation was successful in improving the situation of abuse. The most common outcome was that the confrontation was unsuccessful, but there were no changes in the abuse (i.e., it did not worsen; n = 51, 69%). For example, the perpetrator refused to talk or meet with the concerned person or lied about the abuse. In 18 cases (24%) the confrontation was not successful, and it resulted in further abuse or other negative consequences. For example, the perpetrator made allegations against the concerned person or their relatives (to services or to the victim) or became abusive verbally or physically towards them. In a minority of cases (n = 9, 12%) there had been a change in the situation, but it had not resolved yet (e.g., the perpetrator had acknowledged their wrong and might be trying to seek help or return money). Only in one case (1%) the confrontation was successful (i.e., the abuse stopped).

Anticipated Outcomes from Helpline Contact and General Attitudes Towards Third-Party Intervention

Information about concerned persons’ goals when contacting the helpline (e.g., what they wanted to achieve) was available in 334 cases (25%) and was analyzed using qualitative content analysis. The main goals of enquirers when contacting the helpline can be found in Table 5. Primarily, concerned persons wanted general advice or advice regarding a specific service/measure that they were considering. In addition, they frequently wanted more information about laws, or the legal obligations of services or individuals, older adults’ rights, and the nature of EA itself.

Table 5 Concerned persons’ goals when enquiring from the helpline

In terms of the type of advice provided by the helpline, among the 1352 cases reported by concerned persons, the helpline recorded the recommendations they provided in 1152 (85%) cases. The most common recommendation was to contact social services (n = 613, 53%), followed by legal services (n = 384, 33%). Other concerned persons were signposted to contact the police (n = 167, 15%), management (n = 50, 4%) or the Care Quality Commission (n = 28, 2%). Finally, many were signposted to “other” services (n = 508, 44%). See Table 1 for clarification about these categories.

Another study aim was to gather more information about concerned persons’ attitudes towards third-party intervention: for example, what they want to happen when others, particularly formal services, get involved in helping the victim or themselves, and what they want to avoid. Both the concerned persons’ wishes towards intervention and the outcomes that they wanted to avoid related to several main areas. The most commonly mentioned in both what concerned persons wanted and what they wanted to avoid were specific support from services, victims’ housing or living arrangements, and the disclosure of abuse and its outcomes. They also reported their wishes for the perpetrators. The most common categories within each of these areas can be found in Table 6.

Table 6 Concerned persons’ wishes towards third-party intervention

Impact

Data about impact on the concerned person of the abuse and help-seeking experience was recorded in over a third of cases (n = 586, 43%). All the data gathered were analyzed using qualitative content analysis. Informed by prior literature (Breckman et al., 2017), the researcher aimed to create codes within two different areas: type of impact previously experienced and the reason for the impact reported (whether it was due to helping the victim, due to knowing about or being impacted by the abuse, or both). After the researcher became familiar with the data for impact on the concerned person, and noticing that in some cases there were additional people (not specific to the direct victim) affected by the abuse, the researcher decided to classify each case by whether any person additional to the concerned person and victim had been impacted.

Type of Impact

The impact of the abuse or seeking help on behalf of the victim can be found in Table 7. The most common type of impact was psychological or mental health impact, followed by a negative impact on the relationship with the victim (e.g., not being able to see the victim).

Table 7 Impact suffered by concerned persons by type

Reason for the Impact Reported

In most cases, the reason for the reported impact was knowing about the abuse or being impacted by the abuse situation itself (n = 445, 76%). However, in several cases, from the recorded data, it was a result of helping or trying to help with the abusive situation (n = 77, 13%). In some cases, there was impact related to both the abusive situation and trying to help (n = 56, 10%), and in several cases the reason for the impact was unclear (n = 8, 1%).

Target of the Impact

Although in most cases the enquirer was the only person impacted (n = 546, 93%), there were 21 cases where one other person was impacted. This was most commonly the enquirer’s partner/spouse (n = 8) or the enquirer’s sibling (n = 7), followed by their child (n = 3), mother (n = 2), or friend (n = 1). In a similar number of cases (n = 16), there were two or more persons impacted in addition to the enquirer, usually the “family” (n = 13), but also identified as siblings (n = 2), and a husband and a daughter (n = 1). There were two cases in which the impact was specified as affecting only someone other than the enquirer—their spouse.

Discussion

The purpose of the present study was to explore the profile of concerned persons, their experience and wishes in seeking help for the victim, and the impact on them of the abusive situation and the help-seeking process. Concerned persons were primarily female family members, often helping a parent who was being abused by another family member, very frequently the concerned person’s sibling. The concerned persons’ experience of seeking help was overall negative, and barriers to help-seeking primarily related to formal services. They also experienced barriers related to the perpetrator’s behavior and challenges when the victim did not agree with seeking action. Finally, the impact on concerned persons was varied and wide-ranging in severity, affecting their mental and physical health, financial status, and relationship with the victim.

Concerned Persons’ Profile

The familial relationship between concerned persons and alleged perpetrators is likely to create many challenges in seeking help, but also for professionals interacting with family members when there is suspected abuse. The finding that concerned persons are primarily children of victims reporting abuse perpetrated by a sibling adds to the literature on EA dynamics. Even though family members are often the most common perpetrators of EA (Dow et al., 2020; Weissberger et al., 2020), they are also the most common advocates for the victim. Given that most enquiries to the helpline over a year were made by concerned person, the requirement for sensitive management of and response to EA concerns is emphasized.

Barriers and Facilitators to Help-Seeking

The present study has expanded knowledge on barriers and facilitators to seeking help in EA, by focusing on concerned persons’ perspectives and experiences. Barriers most commonly related to formal services, likely due to the context of the helpline. Given that the helpline is primarily a source of advice, often including the recommendation to contact other services (Action on Elder Abuse, 2008), helpline staff are likely to explore enquirers’ previous attempts to seek help, in order to know where to signpost enquirers. Barriers related to fear (e.g., of repercussions) were also common, consistent with previous research where third parties involved in EA cases were afraid of retaliation for reporting the abuse (Storey & Perka, 2018). These worries do not seem to be unwarranted, as some concerned persons in the study had experienced retaliation from services or individual perpetrators. Barriers related to the social network were also common, and several concerned persons did not have the support of other relatives or friends, which may have prompted feelings of responsibility over the abuse (Moschella et al., 2018).

Barriers related to services and a new theme of barriers related to the victim’s behavior not only highlight the perspective of concerned persons, but, at the same time, offer an insight into the struggles of services to respond to EA and address third-party concerns. Safeguarding generally requires the victim’s consent when the victim has mental capacity, prior to assessment and intervention (Department of Health and Social Care, 2020). However, the victim’s view may differ with the views of concerned persons, who may be particularly reluctant to intervene when other family members are involved (Dow et al., 2020), all of which might mean professionals are unable to assess the allegations. Professionals need to be mindful that concerned persons, even if informed of legislation, will still struggle with seeing a loved one being hurt.

In terms of triggers and facilitators leading to help-seeking, concerned persons sought help out of concern for the victim’s safety and also following an escalation of abuse. This is consistent with previous findings for EA victims (Fraga Dominguez et al., 2021a) and may be related to feelings of responsibility over the victim’s wellbeing (Moschella et al., 2018). It is important to understand ways of supporting concerned persons to make earlier disclosures, to avoid further harm. Nonetheless, it is possible that, by waiting to report, concerned persons are merely respecting the victims’ wishes not to involve services.

Sources and Goals of Help-Seeking and Responses from Sources of Help

In terms of concerned persons’ help-seeking patterns, they had primarily sought help from formal services, generally receiving negative responses and achieving little success in stopping the abuse. There could be an overestimation of negative experiences with services, given that those enquirers with less success are probably more likely to contact the helpline. However, these experiences are still important in shaping practice and understanding how services can provide a better response. The number of concerned person enquirers is relatively high (n = 1352) and only covers one year of data from the helpline, suggesting there are many family members, friends, neighbors, and acquaintances who may be struggling to support EA victims and interact with services. Concerned persons also confronted the perpetrator, and almost a quarter were met with negative consequences for themselves or the victim, such as increased abuse. The findings suggest that confrontation is rarely successful and may put concerned persons and victims at risk of further harm. Thus, it is not an advisable or safe way of resolving abuse. However, confronting the perpetrator may be something that concerned persons prefer if they want to privately address a family matter, or where the victim does not support formal intervention (Dow et al., 2020; Mackay, 2017). For this reason, in order to reduce risk, confrontation needs to be explored and discussed actively by professionals when they interact with concerned persons. Professionals need to make concerned persons aware of the risks of confrontation for victims and concerned persons, and evaluate safer alternatives, which may require formal services’ involvement. Breckman et al. (2017) recommended that services for concerned persons should include education about EA and ways of being effectively involved without harm to themselves.

At the moment of enquiring from the helpline, most concerned persons wanted general advice about how to proceed, or specific advice in their interaction with services. This is consistent with the purpose of the charity’s helpline. However, some needed general knowledge about EA, relevant legislation, and the rights of older people. These findings suggest there is still a need for more population awareness about EA and related laws and policies (Breckman et al., 2017; Fraga Dominguez et al., 2021a; Mackay, 2017). Long-term, concerned persons expressed wishes in several areas (specific help, the victim’s housing and living arrangements, and the outcomes of disclosure), indicating that there is a need to explore these varied wishes in their interaction with services. Nonetheless, because of the use of secondary data, only a small number of cases had data available regarding wishes, and thus future studies should gather primary data to investigate concerned persons’ goals and needs.

Impact of Abuse and Help-Seeking on Concerned Persons

The current study findings expand previous research by identifying some of the ways in which concerned persons are impacted (Breckman et al., 2017; Kilaberia & Stum, 2020). The impact of abuse and help-seeking on concerned persons ranged widely in severity, but it was clear that, for some, it was not mere concern that they were experiencing, but more severe impact to their mental health, as well as victimization by the perpetrator. Abuse by the perpetrator was sometimes severe, including a threat of homicide, physical assault, and false allegations. These findings can be considered in light of recent suggestions that concerned persons may need to be framed as secondary victims (Kilaberia & Stum, 2020). Another major impact of the abuse for the concerned person was the loss of their ability to see the victim, due to the perpetrator’s control or restrictions placed by them. This impact is likely to cause particular anguish in concerned persons, who were frequently family members supporting a parent and blocked by a sibling from seeing the victim. In addition to what the concerned persons described to the helpline, their involvement in supporting the victim probably did not stop there. Many concerned persons were advised by the helpline on how to proceed further or on new routes to explore, such as contacting adult safeguarding or legal services.

Previous research found that helping an EA victim was associated with more distress than only knowing about the abuse (Breckman et al., 2017). In the present study, in most cases it was not possible to determine that the impact on the concerned person was a result of seeking help on behalf of the victim rather than the result of knowing about the abuse itself and the perpetrator’s abusive behaviors. However, given that many concerned persons reported seeking help before, it is likely that some of the described impact was associated with seeking help. Therefore, there might have been an underestimation of the impact that was caused by seeking help and not simply by the abuse or knowledge about the abuse. Nevertheless, these two types of impact, from knowledge about the abuse itself and seeking help, may sometimes be intertwined. For example, a perpetrator who may be isolating the victim from a family member may increase their isolation once they notice that the family member is aware of the abuse and trying to seek help. In this example, the concerned person would be affected both by the abuse itself and by the consequences of trying to support the older adult.

Notably, in some cases, the concerned person making the enquiry was not the only one impacted, and another third party (usually another family member) was also suffering from a similar impact as a result of the abuse and/or supporting the victim. This highlights the reach of EA, which we know severely affects victims (Yunus et al., 2019) and emphasizes the need to support concerned persons. Because the current study used secondary data, gathered at a particular point in time, it is possible that many more enquirers and other third parties experienced impact that they simply did not report or that was not recorded, so there could be an under-estimation of the impact experienced. Importantly, there are ways of supporting this group of people, some of which are already being implemented. For example, the New York City Elder Abuse Center (NYC EAC) launched a helpline specifically targeted at concerned persons (Elman et al., 2020; NYC EAC, 2018), considering their specific needs and how they may be impacted by the experience of witnessing abuse or supporting an older adult who is abused (Breckman et al., 2017). It may also be necessary to involve concerned persons in intervention planning (Sylaska & Edwards, 2014) and explore how they are perceived by services.

Implications for Practice and Policy

Practitioners—particularly from social services, police, and legal advice—should be mindful when interacting with a victim’s family members and friends. Concerns by family members—the majority of concerned persons—should be taken seriously; however, given that the perpetrator is likely to be a family member as well, this can be confusing for practitioners. In fact, they may have difficulties establishing who is trying to help and who is harming the victim. In those cases, interviewing the victim alone will be paramount, and so will be seeking corroborating evidence from multiple sources and services. Such a protocol will ensure that victims and concerned persons are protected from the perpetrator. Importantly, the fact that EA perpetrators, victims, and reporters may all be related, stresses the importance of considering family dynamics by policy makers (Dow et al., 2020).

Concerned persons need support, and the negative response they receive from services can make them feel despondent and hopeless. Specific helplines for them, or helplines and services that understand their unique experiences and needs, are necessary (Elman et al., 2020). Professionals should not ignore those concerned persons and should remain in touch and listen carefully to their concerns. If concerned persons are supported in remaining close to victims, they might be able to notice when the situation escalates or when there is an emergency and services must intervene (Mackay, 2017). They may also be the first ones to know when victims reach a threshold and decide that they support intervention. The New York City Elder Abuse Center’s (NYC EAC) helpline for concerned persons (Elman et al., 2020; NYC EAC, 2018) can be used as an example of supporting this population, and future research on service efficacy should be considered when modelling initiatives. Although a specific helpline may not always be appropriate or cost-effective, the experience of the helpline can be used in order to inform the work of existing EA helplines and services that will often be interacting with concerned persons. Finally, further education for concerned persons may be helpful, so that they are aware of relevant legislation and are able to understand how to best manage these cases. For example, focusing on the risk of confrontation, and also emphasizing the need to respect victims’ wishes and the legislation around mental capacity and intervention by services (Mackay, 2017).

Limitations

This study is limited in several ways, primarily because it represents a biased sample of EA cases. First, there is likely a bias towards those experiencing more negative responses in their interaction with services because those may be more likely to continue seeking redress and more willing to enquire from a helpline. However, as highlighted earlier in the discussion, even without knowing the representativeness of these experiences with respect to concerned persons in the general population, the experiences reported in this sample should not be ignored. Importantly, the characteristics of the sample in terms of EA types and victim-perpetrator relationship were consistent with previous research (Joosten et al., 2020; Weissberger et al., 2020).

Second, there are limitations relating to the diversity of the sample in the study. There was no information for the enquirers relating to important areas such as race/ethnicity, socioeconomic backgrounds, and sexual or gender minorities, meaning that it is not possible to understand how representative the sample is of the diversity of the UK population. Recording these characteristics in future samples, with a consideration of intersectionality, will be essential in understanding the different barriers to service access that may be faced by different groups in the population.

Third, the source of data (e.g., the organization) may affect the data obtained, in that Hourglass’ campaigning work and organizational characteristics may attract specific enquiries. Nevertheless, this helpline was chosen due to its strengths (i.e., representativeness, national recognition, and special focus on EA; Podnieks et al., 2010). Finally, the EA cases are not substantiated and are based on self-reporting by helpline enquirers at a particular point in time. Nevertheless, because the aim of the study was to understand enquirers’ perspectives of seeking help, their perceptions are of utmost importance.

Conclusions

The present study aimed to explore the profile of family members, friends, neighbors, and acquaintances of EA victims (“concerned persons”), their help-seeking experience, and the impact of knowing about abuse and/or seeking help on behalf of the victim. Concerned persons were primarily the victims’ female family members, who experienced many barriers at different levels, but particularly in relation to formal services. Seeking help on behalf of the victim came at a great cost, particularly psychologically. The study provides support for the need to continue investigating the experience of concerned persons. Additionally, it suggests that practitioners may need to provide tailored support to these concerned persons, given that they are in an ideal position to assist victims, and connect victims with formal services, but may not be able to do so without appropriate assistance.

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Acknowledgments

The authors would like to thank the charity Hourglass for their support with this project, by allowing access to their records. The views presented in this paper represent those of the authors. The authors would also like to thank Anjali Wisnarama for her help during data collection by undertaking secondary coding of the data.

Funding

The first author was supported by a college studentship awarded by Royal Holloway, University of London.

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Correspondence to Silvia Fraga Dominguez.

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Ethical approval received by Royal Holloway, University of London on 7th May 2018 (ID 994–2018-07-05-12-13).

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Fraga Dominguez, S., Storey, J.E. & Glorney, E. Informal Supporters of Elder Abuse Victims: Who Are They and What Is Their Experience Seeking Help?. J Fam Viol (2021). https://doi.org/10.1007/s10896-021-00347-5

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Keywords

  • Elder mistreatment
  • Concerned persons
  • Family members
  • Help-seeking
  • Barriers