Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma

Howlett, Helen and Catterick, Maria and Onukwugha, Franklin and Roberts, Helen and Dyson, Judith and Smith, Lesley (2023) Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma. Research for All, 7 (1). ISSN 2399-8121

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Abstract

To reduce the number of alcohol exposed pregnancies in antenatal care, the CHAMPION study objective was to design appropriate training and resources to develop the midwifery skills and confidence required to have an effective conversation about alcohol with pregnant women. Women with lived experience of drinking during pregnancy and a child with FASD ‘birth mums’ were central to the co-creation process of the CHAMPION study. Some remarkable unintended positive outcomes resulted from this collaboration process for the women involved. They include increased confidence levels from newfound friendships with other mothers of children with FASD and an acceptance that societal influences had a significant role to play in their personal situations. Reflecting on this authentic co-creation process has elicited important learning outcomes to inform future research design. The significance of excellent communication channels, robust support networks and genuinely valuing and respecting experts by experience as equal partners cannot be underestimated.

Item Type:	Article
Additional Information:	Full list of co-authors: Helen Howlett, Maria Catterick, Charlotte**, Karen**, Cheyenne**, Franklin Onukwugha, Helen Roberts, Judith Dyson and Lesley Smith ***Co-author is anonymised and uses a pseudonym to protect their identity throughout this article.
Identification Number:	10.14324/RFA.07.1.02
Dates:	Date Event 28 November 2022 Accepted 16 February 2023 Published Online
Subjects:	CAH02 - subjects allied to medicine > CAH02-04 - nursing and midwifery > CAH02-04-01 - nursing (non-specific)
Divisions:	Faculty of Health, Education and Life Sciences > Centre for Social Care, Health and Related Research (C-SHARR)
Depositing User:	Judith Dyson
Date Deposited:	15 Dec 2022 10:07
Last Modified:	05 Nov 2024 15:11
URI:	https://www.open-access.bcu.ac.uk/id/eprint/13974

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