Availability of region-specific endometriosis care guidance: a global scoping review

Evans, Devon and Gibbons, Tatjana and Skidmore, Becky and Zondervan, Krina T and Adamson, G David and Giudice, Linda C and Missmer, Stacey A and Abbott, Jason and Abrao, Mauricio and Becker, Christian and Bush, Deborah and Canis, Michel and Cox, Emma and Dyer, Silke and Farquhar, Cindy and Flores, Idhaliz and Gajbhiye, Rahul and Guo, Sun-wei and Gupta, Jhumka and Harada, Tasuku and Horne, Andrew and Hummelshoj, Lone and Johnson, Neil and Kihara, Anne and Kvaskoff, Marina and Maggiore, Umberto Leone Roberti and Nap, Annemiek and Njagi, Joseph N and O'Hara, Beck and Oral, Engin and Salamon, Adrienn and Tomassetti, Carla and Weckesser, Annalise and Zegers-Hochschild, Fernando and Zhang, Jian (2025) Availability of region-specific endometriosis care guidance: a global scoping review. The Lancet Obstetrics, Gynaecology, & Women's Health, 1 (3). e219-e231. ISSN 3050-5038

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Abstract

Guidance on standards of care, particularly incorporating region-specific needs, is foundational to high-quality health care. The availability of region-specific guidance on endometriosis care, particularly in low-income and middle-income countries, has not previously been documented. We conducted a scoping review of endometriosis care guidance in each of the 194 WHO member states to identify the highest organisational level of guidance by region. Nine sources were defined, ranging from national society and government documents to news and social media posts. There is geographical heterogeneity in the existence and sources of guidance, with the greatest availability in Europe. In regions where national societies or advocacy groups exist, many do not maintain or reference care guidelines—even when they exist locally. To ensure patients, providers, and policy makers have access to endometriosis care guidance, patient advocacy groups, professional societies, and governments need to create, maintain, and publicise their resources for patients and providers.

Item Type: Article
Identification Number: 10.1016/j.lanogw.2025.100004
Dates:
Date
Event
2 June 2025
Accepted
5 November 2025
Published Online
Subjects: CAH03 - biological and sport sciences > CAH03-01 - biosciences > CAH03-01-02 - biology (non-specific)
Divisions: Life and Health Sciences > Life and Sports Sciences
Depositing User: Gemma Tonks
Date Deposited: 01 Dec 2025 15:10
Last Modified: 01 Dec 2025 15:48
URI: https://www.open-access.bcu.ac.uk/id/eprint/16745

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